After months of tranquility, yesterday was a really bad day. Another bloody episode that undermined Catherine's progress. I left her unattended for 5 minutes, while I was washing the dishes, and when I found her, she was sitting in the floor silently clawing her nails all over her face. She was bleeding so bad that I could barely see her eyes. Instead of getting mad, my reaction was to cry, cry so loud like a baby; she was in shock, I picked her and I took her to the bathroom; while I was cleaning her face, she said: "I'm sorry". I felt devastated, like the worst caregiver ever. Hopefully, she can heal faster from this.
It was a good month. Finally, our first road trip since we started the withdrawal process. A couple of months ago, it was impossible to drive for more than 30 minutes because she felt constantly itchy. Therefore, driving for four hours without complaining was a big milestone.
Catherine had a blast in Sarasota despite the bad weather conditions: hot and humid with tons of mosquitoes. She only complained of being itchy when we were on our way to the hotel and before getting to sleep.
Catherine has red patches in both arms, torso, armpits and at the top of her feet. She wakes up constantly at night rubbing her face. Now, she hates to use the anti-scratch sleeves, so we have to wait until she is sleeping to put them on, but sometimes, we are so tired that we forget; so, she scratches so bad that makes her sensitive areas bleed.
In the last months, we have seen a link between Catherine's behavior and scratching. Every time she is sleepy, asleep, hungry or bored she feels really itchy. For that reason, we are looking for alternatives to break the itch-scratch habit.
Since she stopped nursing, her appetite increased. Her diet is limited to chicken stock with vegetables, turkey patties and snacks like oven roasted cauliflower, kale and soybeans. She eats a popsicle made from fresh apples and carrots almost every day. She also eats white rice or quinoa in every meal.
In summary, it was a great month! We are now able to do so many things that we previously couldn't do. Going for vacations was a good way to revitalize us. We enjoyed as a family like we used to.
Catherine is a brave girl going through Topical Steroid Withdrawal. The goal of this blog is to raise awareness about Topical Steroid Addiction and Withdrawal.
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This blog is not intended to be medical advice