Last night I was watching the Lorax movie with my son. Something that caught my attention from the story line was the business model of O'hare company; very similar to the steroid cream industry. [READ MORE]
The song "Roar" by Katy Perry has become an anthem of hope for Catherine. This is the perfect song for a family like us desperately seeking something to hold on to. I would say, it is our daily mood booster. The lyrics evoke a courageous attitude, a way to say "I'm going to kick eczema's butt". Part of the lyrics say:
"...You held me down, but I got up
Get ready 'cause I’ve had enough
I see it all, I see it now
I got the eye of the tiger, a fighter, dancing through the fire
Cause I am a champion and you’re gonna hear me roar..."
Catherine is just starting the fifth month of topical steroid withdrawal, so, she still has a long road ahead; but we are sure someday she will win this battle and she will be eczema free. For the moment, we have to hang in there and keep roaring!
We have a feeling that this month is gonna be a good one. First, we have family at home; so, stress shouldn't be an issue. For two months, I won't be worried about cooking, going to the bathroom or going on a car trip.
Second, we will continue relying on the amazing healing properties of apple cider vinegar. We have been adding one cup in her bath since last week. According to many studies, vitamins present in this vinegar have shown to make difference in boosting the immune system and therefore, it is considered a natural remedy to fight skin conditions such as eczema.
Last but not least, we are putting a lot of emphasis in Catherine's nutrition. We are giving her probiotic, vitamin D and cod liver oil as daily supplements. She is eating more rich-mineral foods to create the correct ph balance within her body to function properly.
Even though we are optimistic about this month, we are aware that our approach is not a quick fix. Hopefully, the real outcome will be visible in the upcoming months.
Overall, it has been the worst month since we quit steroids. It was better for only 5 days at the most when we implemented the GAPS Diet. Ups and downs as per usual. She caught a virus and then, the bronchiolitis followed. She didn't wear anti-scratch sleeves for two nights and she clawed her cheeks with her nails. On the other hand, we stopped giving her antihistamine, because she has taken it for more than a year and it wasn't helping her anymore. We just started holistic therapy, an alternative medicine that tend to emphasize proper nutrition.
Having a child with eczema and going through Topical Steroid Withdrawal is not an easy task. In our case, all the attention goes to Catherine; while finances, household chores, parenting, marital stress, and social life become disrupted and insanity becomes part of the daily routine. Read More: The Paradox Of Insanity
The non-flare stage didn't last long. Catherine caught a cold and she has been fussy for the last two days. Every time she is sick or teething her eczema gets worse. It has been difficult to continue with the GAPS Diet since she has lost her appetite. Along with the GAPS Diet, we just started a six month program with an holistic counselor to heal from the inside out. Our first session emphasized the fact that adrenal glands must be functioning properly to decrease inflammation. So, to achieve this goal Catherine's diet should include more minerals and adopt good sleep habits.
"No! To Topical Steroids" is the only book I know so far that explains Topical Steroid Withdrawal in Babies and Kids. It is written by Dr. Mitsuko and Dr. Kenji Sato, two Japanese doctors who have a lot of experience in Topical Steroid Withdrawal, Protopic Withdrawal and Moisturizer withdrawal. The first pages of this book are heart wrenching with TSW pictures of babies and children showing their progress. The good thing is that all of them end their journey with healthy skin.
Read More: 10 Important Things To Know About Eczema
Catherine's eczema seems to be improving. We introduced GAPS Diet slowly. In the introduction part of this diet, Catherine's food heavily relies on homemade bone broths (chicken and beef stocks) with vegetables. The goal is to detoxify her body. Foods difficult to digest, like starches, grains, and sugars are avoided to allow the gut heals by itself. Since I'm still breastfeeding, I'm also following this diet, but less restrictive.
Catherine is a brave girl going through Topical Steroid Withdrawal. The goal of this blog is to raise awareness about Topical Steroid Addiction and Withdrawal.
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This blog is not intended to be medical advice